Moscow launches production of medicines for orphan diseases and asthma

A resident of the special economic zone (SEZ) Technopolis Moscow, launched a workshop for the production of drugs for the treatment of bronchial asthma, cardiovascular, rare and hereditary diseases. This was announced by the Deputy Mayor of Moscow for Economic Policy and Property and Land Relations Vladimir Yefimov on Friday, July 29. “The enterprise rented … Read more

The daughter of the heroically deceased teacher of the Ulyanovsk kindergarten was left an orphan The deceased teacher of the Ryabinka kindergarten in the village of Veshkaima, at the cost of her life, blocked the path of a criminal who was going to shoot a crowd of children. It is not known how many lives the teacher saved by her actions. However, it is known that she had a … Read more

Continuity Added to the Circle of Good // White House Optimizes Funding for Rare Disease Treatment Program

The government has updated the rules for granting a budget grant to the Circle of Kindness fund to support children with severe and rare diseases – they will become effective in 2022. The main change, as follows from the decree signed by Prime Minister Mikhail Mishustin, is the possibility of purchasing drugs in advance for … Read more

Children in the home: community activists warn about the danger of the formation of “orphan ghettos” | Articles

Representatives of public organizations that help orphans asked to revise the bill, according to which the number of apartments intended for graduates of orphanages in one house can be increased from 25% to 50%. The document is now in the State Duma… The amendments should improve the situation with the provision of orphans with housing, … Read more

For a prescription to the government // Orphan patients are waiting for the promised medicine

Parents of children with oncological orphan (rare) disease have addressed an open letter to the Russian government with a request to take control of the situation with the treatment of such patients. After the state-owned Krug of Kindness foundation promised to purchase a drug for the treatment of neuroblastoma, many regions began to relieve themselves … Read more